KAFA... need advise...

nurryn · Post time 12-8-2008 10:06 AM

Nak tanyer pendapat korang... anak aku thelesemia... mmg fragile la.... bebaru ni doktor suggest dier stop skolah kafa since too heavy for her... aku cam ala2 sayang coz anak aku so far blh catch up 2-2 sekolah... periksa dier for 2-2 sekolah average 90% ke atas... aku dh jumpa guru kelas dier... n guru kelas dier pon x galakkan dier berhenti... aku pon sayang nk stop kafa tu since harapkn kitorg ajar fardhu ain tu, mmg payah la... tp, bebaru ni anak aku warded dlm 10 hari gak la...

aku dh tanyer dier... dier nk skolah lagi x kt kafa tu... dier kta nk stop... aku tanyer, kakak penat ker..? dier ckp, kawan kakak kata kakak anak cina... kakak ader 2 jer kawan baik kat situ... situ skolah x best... hurm.... so, lain la plak jawapan dier... bukan sebab x larat...

aku need advise la.... camna nk buat ekk...?

OraNewID · Post time 12-8-2008 10:09 AM

why don't u find an ustaz/ustazah yg boleh dtg rumah everyday utk ajar anak u Fardhu Ain...

dukalara · Post time 12-8-2008 10:11 AM

Originally posted by nurryn at 12-8-2008 10:06 AM
Nak tanyer pendapat korang... anak aku thelesemia... mmg fragile la.... bebaru ni doktor suggest dier stop skolah kafa since too heavy for her... aku cam ala2 sayang coz anak aku so far blh catch ...

major ke? kena buat blood tranfusion ke?

or just a carrier?

nurryn · Post time 12-8-2008 10:15 AM

area umah i tu, x ramai melayu... tu yg payah tu...
i dh tanyer ustazah kafa tu... dier ckp, if time cuti sekolah blh la if dier x blk kg....

nurryn · Post time 12-8-2008 10:19 AM

reading hb dier fluctuate... kekadang if dier sehat n makan properly, blh smpai 10.... if demam, can drop up to 8... pernah sekali dier demam teruk after kitorg gi holiday... smpai 5 jer... so, kena blood transfusion gak la, in 2005....tu kire 1st n last la.... dier pantang naik tmpt tinggi cam genting... pressure rendah kn...

OraNewID · Post time 12-8-2008 10:21 AM

minta ur hb rajin2 gi surau yg plg dekat... and ask around.. insya'allah ada..

u duduk mana?

dukalara · Post time 12-8-2008 10:24 AM

Originally posted by nurryn at 12-8-2008 10:19 AM
reading hb dier fluctuate... kekadang if dier sehat n makan properly, blh smpai 10.... if demam, can drop up to 8... pernah sekali dier demam teruk after kitorg gi holiday... smpai 5 jer... so, k ...

Thalasemia major ke nurryn? rasanya kalau hb dia dalam 10... carrier je tu... you kenalah buat pengesahan samada dia major ke atau just a carrier......

Both of you... nurryn and hubby... carrier ke? kalau both are carrier... boleh jadi anak2 boleh dapat thalasemia major (25%).... the rest boleh jadi carrier... and bebas thalasemia 25%.....

kalau major kena buat regular blood transfusion .....

Pernah bawa anak ke HUKM?

dukalara · Post time 12-8-2008 10:26 AM

Originally posted by nurryn at 12-8-2008 10:19 AM
reading hb dier fluctuate... kekadang if dier sehat n makan properly, blh smpai 10.... if demam, can drop up to 8... pernah sekali dier demam teruk after kitorg gi holiday... smpai 5 jer... so, k ...

Pernah kasi dia makan folic acid? cuba tanya doktor...biasanya kalau ada thalasemia... doktor akan suruh ambil asid folic....

nurryn · Post time 12-8-2008 10:32 AM

i ddk area cheras....

otto · Post time 12-8-2008 10:40 AM

kalau di beri pilihan antara mana satu yg lebih penting - kesihatan atau pendidikan - mana yang awak pilih?

prioritise, then u will get the answer.

ammar_7e · Post time 12-8-2008 10:42 AM

u boleh iklankan dekat cari ni mane2 student yg nak wat part time ngajar KAFA utk anak u..
mesti ada punya..
kalu i duk sana, i dah ajar dah..

Sweetmama · Post time 12-8-2008 10:42 AM

how old is she nuryn...mmg packed anak if sekola dua2 sidang..infact kafa was done in their school sahaja....
my kids tak pg kafa..
tp alhamdulillah with their agama knowldge...

i hv to opt for ustz dtang uma la...
dulu 3x seminggu
now 2x seminggu aje
coupled up w me n his dad ajar derang apa patut ..

ur doters case tu nuryn, let her rest more la...

u hv maid at home do u?

nurryn · Post time 12-8-2008 10:42 AM

i

Originally posted by dukalara at 12-8-2008 10:24 AM

Thalasemia major ke nurryn? rasanya kalau hb dia dalam 10... carrier je tu... you kenalah buat pengesahan samada dia major ke atau just a carrier......

Both of you... nurryn and hubby. ...

hubby i carrier.... i -ve...
anak i thelesia minor.... provided i kene jaga bebetul makanan dier...
paksa dier minum susu setiap pagi n b4 tido....
skang ni on asid folic...

weird x..... sebelum ni, anak i thele intermedia.... memacam i cuba termasuk la tradisional...
at that time, 3 bln skali follow up kt ampang putri... n tiap kali tu la i nangis since anak i kena buat blood test nk tgk reading hb dier.... at dat time, reading dier biasa2 8... so, bygkn if demam mmg blh jatuh smpai 6.... kitorg try byk tmpt gak termasuk herba china...
syukur hb anak aku dh naik skang.... antara 9-10.... doktor pon pelik... biasanyer hb akan ikut range biasa jer... maybe gak anak aku dh stat suka makan macam2.. skang ni pon, 6 bln skali jer gi follow up... amik darah pon kt finger tip jer..

nurryn · Post time 12-8-2008 10:45 AM

u r right.... tq

otto · Post time 12-8-2008 10:50 AM

glad to be of help. u hang tough!

nurryn · Post time 12-8-2008 10:56 AM

Originally posted by Sweetmama at 12-8-2008 10:42 AM
how old is she nuryn...mmg packed anak if sekola dua2 sidang..infact kafa was done in their school sahaja....
my kids tak pg kafa..
tp alhamdulillah with their agama knowldge...

i hv to opt ...

she is 7..... mmg too packed for her... since awal tahun, dia start kafa at 7.30... n go transit before being sent to sekolah kebangsaan... kol 6-6.30 baru nk blk umah....
i ader maid before.... tp dh hantar balik since no one kt umah time siang2 hari...
anak 1st i ni dr pagi smpai ptg on school... penah dier blk dr kafa...x transit... tp, dier ader 30 minit jer utk mkn, mandi n tukar baju b4 pergi sekolah kebangsaan... so, dier penat dlm van jer coz stop byk tmpt hntar n pickup budak2 lain.... dh la tengahari panas...
my 2nd boy tu.... skolah dr 8.30 till 3pm jer.... tadika... tu pon i xtend class dier... i sajer soh dier amik art class coz dier suker conteng dinding n sofa... so, maid i xder keje kt umah, dier gi kacau maid2 lain... tu yg i hntr dier blk... neway, skang ni i sedang looking for new maid... but targeted to reach here by december...
if anak i stop kafa, nmpknyer i kena amik maid earlier la.... so dat pagi2 blh la anak i ddk kt umah....

dukalara · Post time 12-8-2008 11:12 AM

Originally posted by nurryn at 12-8-2008 10:42 AM
i
hubby i carrier.... i -ve...
anak i thelesia minor.... provided i kene jaga bebetul makanan dier...
paksa dier minum susu setiap pagi n b4 tido....
skang ni on asid folic...

weird x..... ...

Syukurlah tu.... anak sayapun carrier gak.... coz papanya carrier.... tapi anak saya cergas dan cerdas...... walau pucat kekuningan sikit...badanpun keding jer dulu2.... makan tak lalu...hb around 9-10...kurang dari normal range.... makan folic acid gak...

Anak saya tu tak pulak mudah letih... melompat je kerjanya.... now dah nampak berisi coz duduk kat sekolah berasrama..ramai kekawan nak lawan makan....

Masa dia sekolah rendah, dia ke sekolah agama juga tetiap hari..... OK je..... sayang kalau berhentikan dari sekolah agama sebab macam2 yang dorang belajar kat situ.. KAFA ke ABIM ke.... hafazan..fardhu ain...bacaan Al-quran etc.. tak terajar dek kita kat rumah....

Mungkin anak you belum dapat adjustkan diri dia dengan jadual yang hectic tu...memang hectic... sayapun kesian kat anak saya...takde masa rehat langsung...malam2 nak buat homework pulak....

Tapi if I were you.... kalau hb anak I menten sekitar 9-10 ... I hantar KAFA at least for the first 3 years... unless anak you memang dah habis mengaji Quran...dah pandai sembahyang dan serba sedikit surah dan doa....bila2 nampak dia letih..mungkin you boleh rehatkan dia..... top-up kan dengan panggil ustaz/ustazah datang mengajar masa weekend.....

Sweetmama · Post time 12-8-2008 11:13 AM

i kno...have been in dat situation before
maidless, so solution, anak at kafa....

carila baby sitter for time being
elz duk kat daycare centre
at least anak u tak rasa so stressed sgt
whilst waiting for ur new maid to come...

aku_sesuatu · Post time 12-8-2008 11:21 AM

cheras area mana kak?
kawasan tak ramai melayu kat cheras ni connought, lensen, bukit anggerik, damai perdana..dll
bagitau area mana, kot2 saya leh usahakan camne...

nurryn · Post time 12-8-2008 11:53 AM

Originally posted by dukalara at 12-8-2008 11:12 AM

Syukurlah tu.... anak sayapun carrier gak.... coz papanya carrier.... tapi anak saya cergas dan cerdas...... walau pucat kekuningan sikit...badanpun keding jer dulu2.... makan tak lalu...hb ...

owh.... anak u pon gitu yer...? anak u lelaki ke pompuan...?
doktor suggest i rehatkn dier for 2yrs... n masuk blk darjah 3... dier ckp budak pompuan weak sket dr budak lelaki....
kafa tu.. i rsa awal2 ni lah foundationnyer... tu yg buat i confused...
kt transit tu... anak i ngaji iqra'... kafa n transit tu very near... dlm 100meter jer..

so xder la dier buang masa atas jalan kn... n van transit amik dier kt kafa terus hntr ker transit..
adiknyer, boy tu pon sama... pengidap gak... both anak2 i ni, if sehat mmg aktif... x macam budak sakit.... tp, biler tgk mata dier kuning jer, mmg kena cepat la buat something...
doktor pon pelik... camna ayahnyer carier jer, tp anak pengidap....
n siap blh change dr intermedia ke minor... both Dr paed n pakar darah dier kta, mmg x pnh jumpa cases cam anak2 i nih...